E-PATH REPORTER, HOSPITAL & LABORATORY INFORMATION QUESTIONNAIRE
This questionnaire is provided to hospitals & laboratories for the purpose of gathering information pursuant to the implementation of computerized cancer case finding and electronic reporting of cancer data to local, regional, and state cancer registries (the E-Path Reporter system). This information will be kept confidential and used only for planning the implementation.
COMBINING E-PATH AND TUMOR ABSTRACTS TO SUPPORT A VIRTUAL TUMOR REPOSITORY
Recent advances in laboratory techniques for extracting high quality genetic material from formalin fixed paraffin embedded tissues (FFPE tissues), such as those that are routinely prepared for the pathologic diagnosis of cancer, have increased the demand for these tissues for genetic analysis. However, wide-spread use of these tissues is limited by the fact that little is known about these tissues outside of the hospital/laboratories where they are prepared and stored. This paper discusses how a comprehensive FFPE Tissue Catalog could be compiled, spanning many institutions, to facilitate the use of these tissues in research. Existing electronic cancer pathology reporting technology (E-Path) combined with standardized tumor abstracts can be used to build and maintain an anonymized annotated Tissue Catalog. Such a catalog would be part of a Virtual Tumor Repository—an entity providing services to facilitate the identification, acquisition, and use of FFPE tissues in specific research studies…(continued)
PROTOCOL FOR THE ASSESSMENT OF THE ACCURACY OF E-PATH
AIM’s E-Path is an automated system for the identification and transmission of diagnostic and clinical reports that meet specified selection criteria. Editions of E-Path are currently available for processing pathology reports and certain diagnostic imaging reports. Work is underway to expand the capability of the system to process other report types…(continued)
GENERAL REQUIREMENTS FOR ACTIVE CANCER REGISTRY INFORMATION SYSTEMS
Active cancer registries collect high quality patient data on an ongoing basis, commencing at diagnosis. Multiple sources may contribute a broad range of information to provide a holistic view of neoplastic disease and support various kinds of research. A patient-event information model is used so that most data are organized in the context of the time course of the disease…(continued)